Printed from: Do you provide help to someone with memory difficulties?
This may include helping them shop, driving them places, assisting them with technology, answering their mail or paying their bills, helping them plan and make life decisions, communicating with others on their behalf, or many other types of regular or irregular help.
Or, do you have memory difficulties yourself?
If yes TO EITHER ONE, you can join the Plan for Clarity study and get $25 to complete a survey.
You can join the study at the bottom of this page.
- Use the this website for about 1/2 hour.
- Complete an online survey that asks your opinions about the website.
You may be asked if you want to also complete a 15-minute telephone interview that asks about your experience using the website. This is optional (only if you want to).
You can use the website and take the survey from anywhere with Internet access using your own computer or tablet.
All information provided will be kept confidential. Your identity will never be shared with others. Plan for Clarity is NOT affiliated with any financial or for-profit legal service providers or companies.
$25 when you complete the survey.
If you also complete a telephone interview, you will receive an additional $100.
You can join the study at the bottom of this page.
More Information About the Study
What Is the Plan for Clarity Website?
The Plan for Clarity website helps people:
- Understand financial and legal planning related to memory conditions
- Learn financial and legal planning steps to take
- Learn how to choose caregivers to help with financial and legal needs
- Learn about legal documents and how to complete them
- Communicate wishes and concerns to others
- Learn how to get help, services, and support in the community
Plan for Clarity is developed by People Designs and the UCSF-UC Law SF Consortium on Law, Science, & Health Policy with partial funding from the National Institute on Aging (grant #5R44AG074131).
Plan for Clarity is NOT affiliated with any financial or for-profit legal service providers or companies. Plan for Clarity does not advertise, does not include paid content, and does not share user data with advertisers or others.
Who Is Conducting the Study?
The study is being conducted by People Designs, one of the developers of the Clarity website. The study’s principal investigator is David Farrell, MPH. He can be contacted by email at dfarrell@peopledesigns.com or by phone at 919-433-6452.
This study is being funded by the National Institute on Aging, part of the National Institutes of Health.
Why Is the Study Being Conducted?
The purpose of this study is to test the usefulness of Clarity, a website designed to educate, encourage, and support advanced financial and legal planning for people with memory difficulties and caregivers of people with memory difficulties. We want to find out how usable and helpful Clarity will be for people of all incomes and abilities. We would like YOUR feedback.
The results of the study will be used to improve Clarity and make it more useful for more people.
Your Participation is Voluntary
Your decision to participate in this study is entirely voluntary. You can stop participating at any time. You can stop reviewing the website or decline to answer any survey or interview questions.
Your Information Is Confidential
We will not share with anyone:
- Your survey and interview responses
- Any other information you give us, or,
- The fact that you are participating in the study.
All staff assisting with this research will strictly follow procedures that maintain confidentiality of your information. All materials that may contain identifying information, including surveys, interviews and electronic communication will be transmitted and stored securely, including being encrypted during transmission and storage; and facilities and equipment handling identifying data will be secured.
After you complete the survey or interview, any identifying information will be permanently removed from the data, so that your answers will be reviewed and analyzed without your identity. All other identifying data will be destroyed upon completion of the research study, approximately 1 year after your participation.
This study has been reviewed by Sterling IRB (OHRP/FDA #IRB00001790) and determined to be exempt research.
Join the Study
You can join the study if:
- You provide help to someone with memory difficulties. -OR- You feel you have memory difficulties or have been told you have memory difficulties.
- You are 18 years or older.
- You live in California, Florida, Kentucky, New Mexico, North Carolina, Oregon, Washington D.C., Georgia, Illinois, or New York. Other states will be added later.
- You are familiar with using a computer for email and website browsing.
- You have internet access, either at home or through another location.
- You understand written and spoken English.
To join the study, fill out the form below. This will create your Clarity account and you can begin using Clarity.